Happy EASTER!!

We want to wish everyone Happy Easter!!!
God is AWESOME!!

Yesterday kids had fun coloring eggs
This one is our favorite ;-)

Spring brake going here like crazy!!!
Kids staying up, having friends over or going for visit.
I got all their conferences done and they are doing very well in school. Misha is very proud being TAG student in his class, so he is exited for extra stuff he get to do, like his older brother.
Enoch went to Seattle just for one night with his band class and should be back late tonight.
Anna finally got to swim at Kroc center and she is planning to swim whole next week.







Anna will be getting her labs done next Wednesday and she really doesn't want to get pocked again. Her next appointment is in May, but we will be continue get her labs to make sure her blood and kidney staying well.

Since Sunday everyone taking turn with 24hr flu. Anna started with one last night and was still wasn't feel good this morning we had to get her labs done and they ARE STILL GOOD. Right now it is almost 3 and she is doing good and ready to meet Blazers team with her dad, other kids want to go too , but this time only for Anna and one adult, i will post pictures later tonight when they get back. Misha has concert tonight and claiming he is well to go and participate in it and doesn't want to miss it.
Other news if u not following my Facebook Harlan finally got a job and starting tomorrow night!!! It is been long 5 month of searching for one ;-)

Anna is home

In last two weeks Anna been having problems with her central line untill last weekend it was really started getting more worse. I had to pick up Anna from school on Monday and take her to Doernbecher hospital, for check up and culture of her line. On Tuesday morning Anna went to school and stayed there untill she was done with her school. During lunch time i received call from Anna's doctor telling me that she has STAFF infection and that they need to admit her and remove line on next day. I waited untill she was home and we were on the way there, Anna was soo exited to get her line out and she seemed didn't care that there is more danger for her to have infection, but what can u expect from a kid who wants do what other kids can, JUST BE NORMAL. She was soo happy all evening and was telling all her nurses that she will get her line out ;-) Later that evening i ask to see her labs results from Monday visit and find out that her kidney levels, not where i would like to see them. I requested to get extra labs in the morning, so we can be sure nothing going on and her kidney level got to normal range. BY that afternoon she got her line out played BINGO and they got to send us home to finish antibiotics. Right before we got discharged lady from Life Child her name Kim cam and ask if we can go to Blazers game. We never took our kids to Rose Garden to watch games and with Anna is wasn't sure if she will up, but we decided give a try we can leave if she will get worse.

I think we had most amazing evening with our kids. They placed us in SUITS, those are rooms for private parties. When we walked in our eyes got VERY BIG. I didn't even know that in the stadiums have rooms like that.

Can u guess where this TV is?









Lots of food!!!





It was fun night, everyone were tired and Anna got to watch all the way with some pain medications.
For the rest of the week Anna staying home to get her line area heal, she can't wait to go back to school on Monday ;-)

Anna is been doing well, we had to stop her antibiotics because of allergic reaction she had. She is only few days away from getting her line out. She talks a lot about what she will be able do specially go to KROC center swimming. We all excited for her, but in the back of my mind sometime i can hear "what if" it is been long journey and when in the past when they got her line out she was back with in few weeks and start treatments all over. We are praying everyday that this time it won't happen it is been over a year since she got this line and it is time to stop and have normal life.
This week Anna got to see Lilly this two girls love each other, worry about each other if one of them sick or in the hospital, understand what they going true, fighting their own diseases that don't have cure for it, but they are ALWAYS have smiles ;-)






Anna got to ride horse this week, she LOVES them and would like to have one for her self.

Anna had unexpected ER visit last night. She started running fever i made phone call to doctor on call David. He decided to save our time and send us to local ER. Why sometimes i don't listen to my self? I was thinking what is the right choice to take her in. From one view i didn't wanted to drive an hour to children's hospital to her her cultures done. My doctor was saying the same thing and it was ok to go to local hospital even in the past we had problems there. They don't know Anna's condition apparently they don't know how to take culture (figure that one).
When we got there they took us straight to ER room, but when we saw the doctor J. (she always misdiagnosed Anna before) there, Anna's eyes went BIG and was trying to whisper IT IS HER AGAN. I told Anna lets just give her a chance she will contact our doctor and everything will be ok.
Because of Anna's fever our dr. David wanted to get cultures done one dose IV antibiotics and then go home. Anna's line has 3 lumen and each of them has to be cultured. When nurse came with one bottle i told her " Aren't you will do culture from each lumen?" her answer was "NO doctor J ordered only ONE it is one line and just has 3 ends, it will be ok, there is NO difference". Anna got her antibiotic and we were released to go home to finish her medication orally at home. This morning i give her first dose and she broke up in HIVES, i had to page dr David. We talk for awhile tried to decide what medication she should take untill we get results, so i explain him what happen in the ER he felt so bad that he recommended me go to local ER. Yes they were supposed to get Anna's culture from each lumen, so we know where is her infection. The results that we are waiting for will not be correct.
Now that she is already taking antibiotic, there is no point to do another culture, so Anna will take antibiotic for 6 days.

Anna is been doing well. She went 4 weeks with out any problems, so our plan will continue another 4 weeks, then possibly, to get her line out right after she is done. We will be just watching her how she does, if she will need it another treatment, then she will be getting another line. Anna is very excited to get her line out and get in the pool ;-) My worry is in the past 2 years they tried to get her line out and she will relapse right before or right after. She had hard time because of thinking that she can't do some stuff and just an idea of having AHUS. Right now she has hope that in 4 weeks this all will be over and she is talking about what she will be able to do and just be a kid with no boundaries. I am praying that this will happen and her heart won't be brok

Anna's school did special days, when they didn't had to wear their school color clothes.
Here is picture that she was dressed for it ;-)




Anna got a kit to make candles:

For last few day's Anna been sick with cold. TONZ of runny nose and head ache. We were worried about her getting relapse. We so thankful that her labs remaining normal, but her urine labs shows lots of blood trace there and some protein. Tomorrow we might be going to see our doctor and on Wednesday she has her treatment.
I will post more update after Anna's treatment.
Please continue to pray for Haiti and specially for Orphanages and kids that being adopted, to get them to their families!here in US!!

Haiti

Please pray for everyone in Haiti.

I been in Haiti twice with my friend and praying someday i can go back there. My friends was bringing her son, so we be able to stay at his orphanage and visit other one NLL at Port-A-Prince. Since then we have desire to go back as missionary, i been following few blogs and stay in touch with few families that working there.

One is "RHFH Rescue Center":
http://haitirescuecenter.wordpress.com/
Two sisters running clinic and take care of very fragile sick kids.
They have about 70 sick kids and also they running clinic for everyone who needs medical help. For last 2 night they have to sleep outside and their worries right now, how to feed babies, they running out of infant formula.

Other blog is "The Livesay family":
http://livesayhaiti.blogspot.com
Tara and Troy Livesay with 5 kids are country directors for World Wide Village.

There are many other places there that needs our prayers and support.


Check out this picture!!!

GOD saying " I am alive!" He can rebuild what the enemy tries to destroy! HE IS GOD!

Anna's first professional hair cut

For Christmas our family received gift card for hair style for everyone, so i decided to take girls there. We made that to be special day, i got girls off school and we headed over to Avalon salon. It is very small place, but ladies there know what they doing. They been working there for a long time. The lady we met she been doing for 14 years. It is pretty cool story, they learn from my friend that Anna has medical condition and they decided to bless our family with hair cuts.
Here are few pictures of the girls ;-)

Our holydays went very well, last year Anna was admited in the hospital during this time and it was hard to be apart. This time we all together and had so much fun just stay home and play games.








Few days before New Year we had first snow and it lasted only one day.





On the New Year eve we had friends stayed overnight. It was lots of fun, they took us out to movie, then we got home just on time to celebrate New Year.

Happy New Year 2010!!

Merry Christmas everyone!!!!

First we want to say thank you everyone with helping collecting Webkinz. After Anna's treatment on 23rd we went visit 9th floor at Doernbecher and give out Webkinz that we collected. I was a little worry about that we will be short on it, but it was just right!!

On Sunday we had Christmas party with Starlight.




This time they had party at Embassy sweets Hotel in Portland. There was loooong table of desert and ice cream and they had Chocolate Fountain ;-)






Kids got to visit with Santa,



Made some crafts and played games;-)








We had to take picture by the tree ;-)