Saturday, September 15, 2012

Our year

Here is what our year is been :) 1: last year from September till November Anna had ear infections, but medications didnt help so later we found out that Anna has Chlesteotoma and had surgery to remove it in December.
2: We had wonderful Christmas:
3: Anna got admited for stomach pains, weight loss, she was there for a week.
4: Anna had kidney biopsy in May
5: Anna started Soliris
6: Louisa's Graduation
I will update our summer on next blog :) Thanks for visiting here and keep us in your prayers :)

Saturday, October 1, 2011

Our trip to Great Wolf Lodge

Thanks to Starlight Foundation we be eble to go to Great Wolf Lodge: biggest wather park we been to LOL We all had blast there and kids stayed in the water prettymuch ALL whole stay except the night time ;-)

Sunday, September 11, 2011

We are back!!

Wow it's been 9 month since last post.
Anna is been doing great!!!! She had her labs done every month and everything stays pretty much where they should be with little slight here there.
This Summer we had my mom visiting us for 2 whole month. This is her first tme in 16 years.... Where the time go...

We all loved having her here, she is the best!!! There was a little problem with language for my kids, but they be eble to communicate with her. We hopping she will be eble to come again soon and might just move here.
I will post few pictures what we been up to this whole time.

Friday, December 31, 2010

Happy New Year!!!

We want to wish everyone have awesome New year!!
We praying that 2011 will be better with no hospital stay, less labs and have better year we ever had!!

Here is some update from our last check up we had early this week:
Anna's labs are doing well, they did found out that her platelets are deformed, they would like to repeat that test to confirm that results are correct. When platelets are deformed they can't clot properly and it makes any small cuts to bleed. If that will confirmed, then we will have to follow with oncologist. We also still waiting to see neurologist.
So beginning of the year it will be a little busy, then i hope we will be done with doctors ;-)

Here few favorite pictures from Christmas
This is the best picture "Grandpa playing "Hunting" game":

Louisa and Anna playing "Dance2 game"

Monday, October 25, 2010


Last weekend Anna had her competitions level5. She did it very well got score 31.775 and now she is can work out level 6 and be ready to compete this level in February.

Wednesday, September 22, 2010

Tomorrow Anna has appointment with hematologist up at Doernbecher. This will be our first visit official with him, he did met us before several time wile Anna was admitted and he want to order some testing, in order to get them done Anna had to be off her treatments. Now that she is off the treatments it is better time to get some testing running.
I will try to update tomorrow night or on wed. how the appointment went

Anna is been doing well, some time she has some sign that shows, that she will get relapse, but by that evening everything goes away. She still struggling to keep her iron up, as soon as it goes up it drops back down. There are some other concerns we have, but i don't have permission from Anna to share until we know for sure what is going on.

Anna is back in Gymnastics and love it!!! She did had hard time at the beginning, as she took almost 2 yr brake, but now she is full time and ready for competitions. Anna is selling Entertainment books 2011 to cover her competitions cost. Let me know if u would like to get one!! They are $25 thanks

I will try to take some pictures this week to post them here ;-)

Carring Cabin

This summer we had awesome vacation at the Caring Cabin. This is awesome place for kids and families to relax and enjoy. We be able to invite our friends to stay with us, we had total 15 people.

Anna by the gate ;-)

This is where we stayed.

Kids are waiting to see play room ;-)

That is play room

They have awesome lake

View from the lake

Anna and Julia loved swimming

That is how many kids we had ;-)

We did lot more stuff there like crafts, BBQ, visit Tillamok cheese factory, roasted marshmallows by the lake....

We finished our trip with beach visit ;-)