Anna had unexpected ER visit last night. She started running fever i made phone call to doctor on call David. He decided to save our time and send us to local ER. Why sometimes i don't listen to my self? I was thinking what is the right choice to take her in. From one view i didn't wanted to drive an hour to children's hospital to her her cultures done. My doctor was saying the same thing and it was ok to go to local hospital even in the past we had problems there. They don't know Anna's condition apparently they don't know how to take culture (figure that one).
When we got there they took us straight to ER room, but when we saw the doctor J. (she always misdiagnosed Anna before) there, Anna's eyes went BIG and was trying to whisper IT IS HER AGAN. I told Anna lets just give her a chance she will contact our doctor and everything will be ok.
Because of Anna's fever our dr. David wanted to get cultures done one dose IV antibiotics and then go home. Anna's line has 3 lumen and each of them has to be cultured. When nurse came with one bottle i told her " Aren't you will do culture from each lumen?" her answer was "NO doctor J ordered only ONE it is one line and just has 3 ends, it will be ok, there is NO difference". Anna got her antibiotic and we were released to go home to finish her medication orally at home. This morning i give her first dose and she broke up in HIVES, i had to page dr David. We talk for awhile tried to decide what medication she should take untill we get results, so i explain him what happen in the ER he felt so bad that he recommended me go to local ER. Yes they were supposed to get Anna's culture from each lumen, so we know where is her infection. The results that we are waiting for will not be correct.
Now that she is already taking antibiotic, there is no point to do another culture, so Anna will take antibiotic for 6 days.

Anna is been doing well. She went 4 weeks with out any problems, so our plan will continue another 4 weeks, then possibly, to get her line out right after she is done. We will be just watching her how she does, if she will need it another treatment, then she will be getting another line. Anna is very excited to get her line out and get in the pool ;-) My worry is in the past 2 years they tried to get her line out and she will relapse right before or right after. She had hard time because of thinking that she can't do some stuff and just an idea of having AHUS. Right now she has hope that in 4 weeks this all will be over and she is talking about what she will be able to do and just be a kid with no boundaries. I am praying that this will happen and her heart won't be brok

Anna's school did special days, when they didn't had to wear their school color clothes.
Here is picture that she was dressed for it ;-)




Anna got a kit to make candles:

For last few day's Anna been sick with cold. TONZ of runny nose and head ache. We were worried about her getting relapse. We so thankful that her labs remaining normal, but her urine labs shows lots of blood trace there and some protein. Tomorrow we might be going to see our doctor and on Wednesday she has her treatment.
I will post more update after Anna's treatment.
Please continue to pray for Haiti and specially for Orphanages and kids that being adopted, to get them to their families!here in US!!

Haiti

Please pray for everyone in Haiti.

I been in Haiti twice with my friend and praying someday i can go back there. My friends was bringing her son, so we be able to stay at his orphanage and visit other one NLL at Port-A-Prince. Since then we have desire to go back as missionary, i been following few blogs and stay in touch with few families that working there.

One is "RHFH Rescue Center":
http://haitirescuecenter.wordpress.com/
Two sisters running clinic and take care of very fragile sick kids.
They have about 70 sick kids and also they running clinic for everyone who needs medical help. For last 2 night they have to sleep outside and their worries right now, how to feed babies, they running out of infant formula.

Other blog is "The Livesay family":
http://livesayhaiti.blogspot.com
Tara and Troy Livesay with 5 kids are country directors for World Wide Village.

There are many other places there that needs our prayers and support.


Check out this picture!!!

GOD saying " I am alive!" He can rebuild what the enemy tries to destroy! HE IS GOD!

Anna's first professional hair cut

For Christmas our family received gift card for hair style for everyone, so i decided to take girls there. We made that to be special day, i got girls off school and we headed over to Avalon salon. It is very small place, but ladies there know what they doing. They been working there for a long time. The lady we met she been doing for 14 years. It is pretty cool story, they learn from my friend that Anna has medical condition and they decided to bless our family with hair cuts.
Here are few pictures of the girls ;-)

Our holydays went very well, last year Anna was admited in the hospital during this time and it was hard to be apart. This time we all together and had so much fun just stay home and play games.








Few days before New Year we had first snow and it lasted only one day.





On the New Year eve we had friends stayed overnight. It was lots of fun, they took us out to movie, then we got home just on time to celebrate New Year.

Happy New Year 2010!!

Merry Christmas everyone!!!!

First we want to say thank you everyone with helping collecting Webkinz. After Anna's treatment on 23rd we went visit 9th floor at Doernbecher and give out Webkinz that we collected. I was a little worry about that we will be short on it, but it was just right!!

On Sunday we had Christmas party with Starlight.




This time they had party at Embassy sweets Hotel in Portland. There was loooong table of desert and ice cream and they had Chocolate Fountain ;-)






Kids got to visit with Santa,



Made some crafts and played games;-)








We had to take picture by the tree ;-)

We had wonderful Thanksgiving.
Kids had lots of fun even it was rainy, but they never can skip trampoline jump at Bonnie's house.



Played dress up with cousins



Make Turkey candy



Played games



Most important ate Turkey!!! Look at those hungry kids waiting for it!!

Happy Thanksgiving EVERYONE!!!!

We getting ready to leave and go spend time with my sister in law and Harlan's parents.
We are thankful to all of you friends for your prayers and support we won't be were we are. Anna is doing amazing, staying healthy. I don't know if you remember in the beginning of this year she was on treatments 3 days a week and now she is every 3 weeks. Pretty soon she will be on once every month and then plan was to stop right before her 12th birthday.

We had great week.
Anna's shoes story went on the newspapers and our local news.
She had her treatments last Wensday and it went well. Her labs staying good and she will continue treatments every 3 weeks, then eventually we will do every 4 weeks.

Last weekend Anna's and other 5 kids desidners shoes are finally out in stores. Kids had fun metting again last friday at Nike campus and sign posters and shoes for employee at the Nike campus.





On Saturday afternoon we went to watch play in Portland Childrens theater "Charlie and Chocolate factory" with Starlight Foundation family's. There usually about 10-15 families. Starlight Foundation almost every month provides family's with outings.




Then we went to visit Niketown store, it was just down the street from theater. It was fun meeting employee's there;-)

Today Anna's story about designing Nike shoes been publish on our local newspaper "Statesman Journal". Here is the link: Anna's Story
Her shoes will be in store in just few days this Saturday. You can find them on line www.nike.com or Nike stores.

Anna had wonderful interview with Statesman Journal. They will post her story sometimes this weekend or beginning next week.
Today i will do post about Give Kids The World.



We love that place and hope some day we will be able to go back there. It is place for Make a Wish families each family stays that they call Villa




Every morning they had meet with characters from Disney World and Universal studio.







Everyday we loved go get some ice cream . We never could pass by with out get one ;-)




We had meals in Gingerbread house. They have lots of toys on their shelves and tables covered with peppermints.




More to come on next post...
We are thankfull for this wonderful trip.