Favorite Foto and update

Anna is been doing well, Our doctor is back from vacation and prescribed her antibiotic to prevent any infections. Anna will have her treatment this Wednesday we praying that her labs will stay good, so we can continue go every-other week.
We had great weekend.
1. We had family reunion:
We went to Waterloo park to see everyone. Most of the families stayed at camp site whole last week. We just went for the day on Saturday and everyone had a blast. Kids didn't want to leave. We will try go overnight next year.
Here are some pictures:








2. On Sunday we had Starlight Foundation Family Art day.
They had California Pizza Kitchen provided dinner for everyone. There was 15 families. Kids had lots of fun and they won some prizes ;-)

Urgent prayer request:

Anna's cap from one of her lines came off and we don't know how long it is been gone. There is concerning that she might get blood infection in the next few days. There is nothing we can do on our side it just to pray that it won't happen.
Thanks

Just want to let everyone know and keep Anna in your prayers

Anna will be skipping her treatments this week for the first time since January and we going every other week. Last week her labs showed that that her HCR went down a little. Usually when it goes down they give her Epogen(to help her build up her blood cells), but they didn't. I am worry about what her labs will be this week (we will get them done here local so we don't have to drive to DCH) and our doctor is on vacation until end of this week. Also her line area is giving a problems and we have to change her dressing everyday.
Yesterday at our church Anna went to ask pastor Mike to pray for one of her friends and also received prayer for her healing. Some people came up and give her very strong WORD about her going out and pray for her friends at the hospital.
Also Anna is asking to pray for her two friends who is very sick, their names Lilly (she has cancer) and BriAnna she has CF
Thanks

We got a letter today, we officially going to our trip for Anna's Make a Wish in October. Can u guess where she is going? She is been waiting for it since January when we applied. We didn't know if her dr.A will let her go, because of limits. Our dr.A is more excited to sign all her papers and let her go have fun!!.
Anna is been doing well and staying healthy with treatments. Next week we will be going on every other week and see how she will do. Now that i am been thinking about our dr.A decision i am OK with it and we all praying that she won't relapse when they will stop her treatment. If her body does get relapse then research group will be starting taking kids for study and Anna will be receiving new medication. It is very promising, there are few people that already taking it and they doing great. We been following their updates and so far they didn't need plasma treatment or any hospital stay.

We been enjoying stay out of hospital and just have normal days of summer play. Other kids been doing well, but Misha sometimes still gets jealous on Anna getting more attention then him and he decided he wants to be sick too. We had long talk with him to help him understand, that hospital is not the play u want to be. We are trying to get some times with each kid, so that way they don't felt left out.

Pray for me.... Pray for others

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I hope everyone had awesome 4th July!!!
We had wonderful time with our friends and following day trip to American Idol concert.
Anna is been doing well with weekly treatments and will be going to every other week starting July 15. Doctors also reduce her blood pressure medications ;-).
Our plan for now is to finish her treatments sometimes in the fall. Doctors hope that when we will stop she won't go in to relapse for awhile maybe year or two, even when last time they tried to stop it came back with in 3-4 weeks. If she will go in relapse, then our hope that research will be available and she be able to get new medication. If she relapses again with in 3-4 weeks, then we have to start all over with treatments and hopefully, that her kidney will stay healthy. With genetic testing we will wait until study is available.
Thanks for continue praying and supporting our family.
It is been a year since Anna is on treatments, hospital stays and weekly trips. We spend our anniversary in her hospital room last year.
Thanks
I also want to ask u to pray for Carrissa 8yr. she was born with Spina Befida She is been having blisters on her legs and doctors thinking it might be her organs are shutting down. It is hard for her mom as they trying to find doctor who can tell them what is going on with her.
Thanks

McLinkey Photo Blog Hop

THis is our favorite photo this week. Anna got tickets to American Idol Tour first concert. Just a ladies went to see it, we had a blast ;-)

HI everyone,
Thanks for stop by our blog.
My name is Sveta and i came from Russia and been here for, o my my it is been 16yr. I never went to school here to learn how to write in english, so if u see my mistakes, don't count them ;-)
I have a wonderful family my husband Harlan and my 4 wonderful kids Louisa, Enoch, Anna, Enoch. My side of the family they all still in Russia and probably won't come to stay here, because they like were they are.
Lots of time i write update about out daughter Anna and our life around her crazy schedule.
We hope u will stop by our blog again!!!
Have a wonderful summer day!!!!