We wish you a Happy New YEAR!!!
I tyed to put picture of her here, but it dosen't work.
Anna still in the hospital and the plan is try to go home on Friday. Last night Anna received unit of and today her labs are much better, but she got lot more protein in her , so we stuck here until we can get her kidney work better. She will be receiving her treatment tomorrow and on Friday.

Well, Anna still in the hospital. Her level still dropping they eventually decided to give her , this is not in our best interest, but this is only choice we had to be able to get her treatment go for tomorrow. Every time she gets , it is less chances for her to be able to get kidney transplant if she ever needed.
We received some new that very discouraged Anna and me, Dr. told as today, that she most likely will have her line for whole year and be on plasma exchange every week. They will NOT try to give her brake from it. This means Anna won't be able to go back to the Gymnastics or even just swimming or get wet in the summer. She is having really hard time with this news.
I have some picture of her, i will be posting them after we get home.

Today Anna got her second treatment, but her numbers still going down. She had some trouble with her treatment reaction we actually had to get her to sleep, to be able to last long enough. She is more pale and with spots, but she has her friend staying here with us, so she doesn't get board, also we been doing "American Idol"

So the plan is right now we waiting for her labs results, then see if she needs transfusion. If she does, then they want to run at night, thru her line that one has only one stitch, that means no sleep for at least 4 hours, then get treatment and then send us home, my plan to get her in the morning and then her treatment. So we will see who will win :-). We do want to go home, but i don't want everything in rush and then comeback here again for another stay.

Here are some update on Anna. Anna didn't got her treatment until later today, so she is more pale. We still have 2 more days of treatment and we should be able to go home. Then we will have to start all over again go 2 time a week, then once a week. Anna is very holding her self well, she was supposed to get her line out this coming Tue, but now we will be stuck with it for at least 3 more month.
Please pray

1. For her treatments times as she gets some reactions to them, so she is on several medications for it plus steroids with it.

2. For our finances as i can't work right now, and i need make decision if i should just stay home. I need God's guide on it.

Hi, everyone, thanks for stoping by.
Anna is doing great, we got to the hospital at 10am and didn't got our room untill 2pm. This was never happen before, there was no rooms avaliable and they didn't wanted to open other side of the hospital just for 1 patian. At 2pm they decited to give us whole floor to our self for few hours. She still didn't got her treatment yet, the pearson is stuck in the snow, so we sitting and waiting for him to come and get her treatment done.

Well we got our Holiday's done, and now we are back in the hospital. Anna will be there at least till Monday. Her labs showing that she needs more treatments, so i don't think we will have her line out anytime soon. At least we are excited, that Anna been home for Holidays.
I will get more updates tomorrow.
Thanks for your prayers.

Merry Christmas

First i want to update about our trip yestuday to our children hospital and we do love snow.
1. Usually takes 1 hour to get there, it took us 3 hours.
2. Anna's labs still dropping, but didn't do any treatments.
3. It took us 4 hours to get home.

We want to wish you a very Merry Christmas

What a week we had.
Since last week we been having snow, snow, frizzing rain and more snow. We think we will have white Christmas after all. I don't remember since i been here in last 14yr to have White Christmas. Here are some pictures.

Here are the pictures of ice on our trees and our car.
It was about good half an inch on it.






Then last night we had some trees fall.







Because of fallen trees we lost our electricity. We found only 3 candles and we set and talk for about an hour, then send everyone to bed. Next morning we got our power back.



Today the forecast was promised just a rain all day, but we had SNOW all day long. We took our kids for hill slides We had so much fun.






Then we went to look at Christmas lights






Tomorrow (Tuesday) we have to travel to the hospital for her labs. It will probably takes us to get there about 2 hours with this weather. Please keep as in your prayers, specially Anna's labs will be better. We want to get closer to get her line out.
Thanks

Favorite Foto Friday

Wow, What a week we had.
Anna is doing great. We going back up to the hospital on Tuesday.
Kids didn't had any school because of snow. The most we got it was only 2-3".
I don't remember have white Christmas. We all hoping that will happen this year.
Today i will post pictures what my kids been doing this week with it.







Please visit more FFF blogs at http://kissthefrog4me.blogspot.com/
P.S. Does anyone know how to make a button? I want to make button for this blog.
Thank you

This picture we took at the hospital Anna and her friend Julia



We had our trip to the hospital Tuesday instead of today. Our roads is pretty icy, but i had to get Anna to Doernbecher hospital because today we supposed to get even more snow.
So we made it there and back. It took us 2 hours to get there and 3 hours to get back with slow traffic. In case you wonder, Oregonians can't really drive fast on icy roads. Our roads not build for snow they build for rain. That is why our kids even don't have school if we have 2-3 inch of snow.

I didn't got results from our dr. yet, but we know she is stable with out the treatment. I heard a few numbers went a little down but it is not a concern at this time.
We did talk about some genetic testing they want to get it done, but we don't know if our insurance will pay for it. This testing can't be done in US only in Germany or Canada. In Canada they not ready for testing yet, so our option will be try the Germany. Right now we will be waiting to hear if our insurance will pay for it.

Our finances are very tight, so i will be trying to make some fleece blankets to raise money for her testing. I will post some of my kids blankets, so you will get some idea. They won't be tie blankets, i like to make with silky binding. It can be two sided or one it will be your choice. If you would like to order one, please let me know.

We went to Christmas light parade last night. We missed parade for last 2yr. so we been waiting for it.

It is snowing here.
Usually we don't get snow around here at this time of the year.

We went to Doernbecher hospital for labs and visit with our DR. Yes, we finally be able to sit and talk with her.
Here are few concern things:
1. Her blood pressure is a little high, they added another medication., so she is on 2 meds.
2. Her urine still has blood and protein in it.
3. Her line is holding on one stitch.

They would like to save her line at least until New year, i don't know if her line will last that long with one stitch on it. She does not have tape over it, do to her allergy, so we have to be very careful with it. Other wise she is doing very well.

On Tuesday we had Great Escape with Starlight Foundation
We went on STERNWHEELER ROSE. My kids never been on any kind of boats before. We had a great time. Here are some pictures

Anna's labs been good, they started to go up again :-), but in the same time time her other number also start to go up. We don't want them ALL go up, we would like to see them go where they need to be. We know for sure she won't need her treatment this week.

Her blood pressure is still a little up, so they adding another medication for that and we waiting to hear when they will be doing another testing.

Yesterday she had her First concert at school. She was a little scared, but she did it great.

Favorite Foto Friday

We love our trips to the beach. Today i just want to show you this pictures and specially of Anna's footprints on the beach.






For more FFF blogs check http://kissthefrog4me.blogspot.com/

Please continue pray for her labs on Monday that they will stay the same.
Thank you

We did our trip to Doernbecher. Anna's labs are stable for right now, but there is showing that her numbers starting go down:-( I expected this news as Anna has some symptoms, that showing her AHUS still there. This is not what we want to see. Our dr. will be contacting blood specialist to see what else can we do.We have to get more labs done on Friday and next Monday, if there will be changes, then we have to go to the hospital. Doctors and us, we hopping that everything will be stopping and Anna will be in remission.

Anna is doing great, she is enjoying her last days of the weekend. She is been sleeping in in the morning and going to bed late :-). She still on her blood pressure medication. We have to go back to the hospital on Wed. and hopefully we will still hear positive news :-).
We got a little problem with the medical insurance, i got a letter last night that our insurance will be on hold until next month(January). That just blow me away, how in the world they think they can do that. I have to go with Anna every week and what i will be doing there with out her insurance. Please keep us in prayers, i will be contacting them first thing in the morning to try resolve this situation.
Thanks

FFF--- Thankfull

We are Thankful, that Anna is getting better.



We are Thankful for our family.
We are Thankful for ALL our friends for helping us this year with our needs. Most of all we Thankful to God that He is here with us everytime we need Him!!!

We had our regular trip to our children hospital. Anna's labs are great!!!!
We still didn't be able to get together with our DR., she had a lots of meetings today. I did heard from others, but not the officially from our DR. that we might will get our line out if her labs will stay good for at least another 2 weeks!! I think that is greatest news we can receive before Thanksgiving. But they did increase her blood pressure medications:-(. Hopefully as her labs getting better, her blood pressure will get better soon, so she will be off all her meds.
We wish you all have a GREAT THANKSGIVING!!!

We had relaxing weekend. It was nice not to be in hurry, to try get things done. Elementary schools have parent teacher conferences, so i will find out how every think going with her.
Anna is having a little high blood pressures, i hopping to see our Dr. this wed. It is very hard to catch her:-) as we coming to the hospital for labs and we don't have app. with her. Our plan for this week is the same we will get labs done, then wait if she needs her treatment. After we will be done we planning to visit Carrissa and her sister Shayne.

Last Wed. after Anna's BINGO game her friend got her ear pierced. Here are some pictures:

We had great time at the Doernbecher Children hospital. First we got Anna's labs and they were great!!! We didn't had to do any treatments, but Anna wanted to stay there longer to play BINGO game. She never misses them, after that we went to the mall with friends and just to look around and one of her friends got her ears pears ed. Anna was exited to watch her be so brave:-)
It was good to see Anna had a great day with her friends and start thinking, that she doesn't need to think, that all her trips is about treatments. She is existed that she is on the road, when she doesn't have to have them.
We didn't see our Dr. so she still on same medications for her blood pressure, but if that won't go down soon, then they will have to change it. We would like to see her to be off of it very soon.

We have to go back to the Hospital next week and do her labs again. Anna and I hopping that God totally healed her and we get her line before New Year.
Please pray today for Carrissa and Jared they having their testings today.
Have a great day!!

Tomorrow we are having trip to Doernecker Children Hospital. Are plan is to get our labs done and hope we can start skipping treatments every other week :-)

Anna does have a little viral infection, but not having any fevers or any sign that she is sick. Her blood pressure is a little high, they might will be changing her medication. Please pray for great day tomorrow.
Thanks

We had a wonderful Saturday. Our family really was in need of time together. Anna is registered with "Starlight Foundation" for kids with serious illness. They do amazing job for kids and their families. We been able to go and watch play "James and Giant Peach"The kids love that play, then we went for dinner. There was other families too. Anna was exited to see her friends. Here are some pictures.

Here is Anna and Shayne


Here are some pictures with actors





Eat dinner at restaurant



Here is me and Carrissa