bggift
Originally uploaded by lululchik
My friend Lyd send me a present in the mail all the from Michigan.
Saturday, May 30, 2009
Monday, May 18, 2009
HI everyone, it is been a wile since i updated.
Most exiting news is that her treatments are down to once a week. They stop Iron IV infusions and down to one medication for her blood pressure.
Anna is going to school 4 day's a week and every Wed. she gets her treatment. On last visit to the hospital someone stole our laptop ;-( We try ed to find it, but no luck. We will have to replace it, because Anna is using that for her school during her treatments.
Anna turn 11 yesterday, she had great day. It started with skipping her school, go to IHOP for breakfast. After everyone got home from school we went to see a movie and pizza. She got for her birthday tickets to "American Idol concert"
Last weekend we had first HOT weeklend and we got to go to our Oregon beach BRRRR it was cold there, but everyone had so much fun
Most exiting news is that her treatments are down to once a week. They stop Iron IV infusions and down to one medication for her blood pressure.
Anna is going to school 4 day's a week and every Wed. she gets her treatment. On last visit to the hospital someone stole our laptop ;-( We try ed to find it, but no luck. We will have to replace it, because Anna is using that for her school during her treatments.
Anna turn 11 yesterday, she had great day. It started with skipping her school, go to IHOP for breakfast. After everyone got home from school we went to see a movie and pizza. She got for her birthday tickets to "American Idol concert"
Last weekend we had first HOT weeklend and we got to go to our Oregon beach BRRRR it was cold there, but everyone had so much fun
Tuesday, May 5, 2009
Last few weeks on Facebook I met parents who has kids with Atypical HUS. It is been great to contact other parents who has kids with Atypical HUS kids. Some parents have little kids, some are older, some are lost their kidney function, some had small % left. This disease is so different and there no one alike. There is new medication available it called Soliris, it is been tried on three people. I got to talk to one mom on the phone and that was awesome to hear who understands what this disease does to our kids and be able to find more information for my self.
Anna is doing great still on her plasmapheresis, i really hopping that our doctor will let Anna skip her treatment on her Birthday. Did i told u her birthday is coming up this month and she will be 11yr. old. Someone came up with idea to send Anna pictures wishing her Birthday and we will put them on Anna's door, so she knows how many people praying for her healing. So if you would like to send it one please e-mail me at lululchik@gmail.com
Anna is doing great still on her plasmapheresis, i really hopping that our doctor will let Anna skip her treatment on her Birthday. Did i told u her birthday is coming up this month and she will be 11yr. old. Someone came up with idea to send Anna pictures wishing her Birthday and we will put them on Anna's door, so she knows how many people praying for her healing. So if you would like to send it one please e-mail me at lululchik@gmail.com
Sunday, May 3, 2009
Favorite Foto RUN
Anna can't run, so she pretending run with Misha.
Misha got to participate in Awesome 3000.
Here he made it to Finish.
Misha got to participate in Awesome 3000.
Here he made it to Finish.
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