Hi, everyone!!
Anna's been having a rough time lately and her spirit's have been down.
If anyone has some extra time, I'm sure she'd love a a note, a card, a drawing from one of your children. If you'd like to mail it, here is our physical address 4970 Windstone Way NE Salem, Or, 97301 Let's let Anna know she's surrounded by prayers. She's only ten years old, but I know she doesn't get to feel like most ten year olds.

This post is part of "Hi/Lo Thursday" on the Riggs Family Blog. Check out their blog to read everyone else's "Hi/Lo" posts and get your link on their site.


Our hi: this week is Anna got treatment only twice this week, she is been attending band with out any complains and being there on time. She stayed at school all day and she didn't had to call me;-)


Our low: On Monday Anna got only part of her treatment and we found out our results today that was a BIG mistake. Her blood level dropped again, she might will need blood transfusion this weekend.
We waiting for God provide financially for her genetic testing. We need it all your prayers for blood levels stay up until we can send it.

We participate in "Pray for Me... Pray for Others" on the Riggs Family Blog. Check out their blog to add your prayer request. Join a community of friends who care about you, and hope you will care about them.

For us:
1. God will provide financially for Anna's testing.
2. For me get better before tomorrow. I am sick with nasty cold and can't be around Anna and tomorrow she will need to get to the hospital for her treatments.
3. Her treatments will go well with out any problems.

For others
1. My friend Christi, she will be having her baby next week. The dr. just found out that baby arms and legs are to short. Please pray that baby won't have any problems and he will be normal healthy baby.
2. For unborn baby boy Israel you can check his blog on my side bar.
3. Please pray for Abby as she is battling her cancer.

It is already almost end of February.
Anna finally started to go twice a week and we hoping she will stay this way and get better every week. It seems she will take step forward and two steps back it is been very hard recovery this time. After they give her iron and other medications last week her blood levels finally starting to go up. Now we have to wait for funds to come to get her genetic testing done. I have a little ticker on the right side, so everyone know how far until we reach our goal.
Today treatment went ok, there were few problems. Anna's line was working very slow and it kept twisting, so she was in a lots of pain. Then they forgot to order her iron and other medications treatment, so she didn't got them today. We hoping that her labs will stay well until Thursday.
Thanks for your prayers and support!!
p.s. I don't have any new pictures, but i will try to take more pictures this week

Here is update:

Most of you know that Anna's genetic testing will not be covered, Anna had really hard time with this news in fear of what will happen now. We had a long talk with her, that God will provide fund for it.



Anna had her treatment on Thursday and got her first dose of iron, it went pretty well.

Our dr. concern is Anna been in school and other public places. We even got to talk about "Bubble boy" movie, where the boy he lived in the bubble. Not that they want to put her there, it just to compare....I told them i can't put her in the bubble, we want her to have as much normal life as possible. She is already lost her gymnastics, she want to do other things, it just won't be fair for her live like this and not to participate in anything. It will be hard for her to see everyone go play and she has to sit at home. Last time when she got small cold she end up in the hospital for whole week and wiped her blood and iron down. There is still mystery why iron wend down so fast with in 2 weeks, usually kids that get blood transfusions get too much of iron. Our most prayers right now is to get fund for Anna's genetic testing, with out that we won't really know what is going on with her with her blood, there is a lots of Q and everyone hope to get it from the genetic results. Right now we just do treatments and support her body with anything that she is missing.



We know our God is much stronger then anyone here and we praying that he will show everyone His healing in Anna very soon.



I (Sveta) had a hard week for my self, feeling i want to just turn around and see all this being gone and have a normal family life. I am tired with all the things being going on.

This post is part of "Hi/Lo Thursday" on the Riggs Family Blog. Check out their blog to read everyone else's "Hi/Lo" posts and for a chance to win $100.

Our High: this week is Anna getting her treatment twice a week HURRAY for that!!! We

Or Low: Our insurance refused Anna's genetic testing, so we praying that God will provide amount that we need. Anna's iron i very low she has to get iron IV every time she gets treatment.
Thanks For your prayers

The insurance said yes, and then said no. They would like prayer for God's provision to have this testing done as soon as possible. Anna's red cell count is low and she needs a blood transfusion, but if she receives a transfusion, she cannot have her blood drawn for this test for at least two weeks (as it will mess up the test with donated blood).

Timing is important, as each new episode is causing more damage to her body and is harder to recover from, and also as she is going to need a blood transfusion.

This genetic test costs $2500. If any are able and led to donate for this thru paypal account for donations or contact me at my e-mail svetikf1@msn.com If you can pass our prayer request to your friends. Every little bit will help.

PLEASE PRAY FOR ANNA TOMORROW , THURSDAY , TOO. She is to have her regular treatments (plasma phoresis) and also is to receive an iron treatment to try and build her red blood count up WITHOUT a blood transfusion (so she can get the genetic blood testing done).

All of these treatments have the potential of an allergic reaction as she has had in the past. Please pray that this will not happen and that all will go well.

Pray for me... and pray for others...

We participate in "Pray for Me... Pray for Others" on the Riggs Family Blog. Check out their blog to add your prayer request. Join a community of friends who care about you, and hope you will care about them.

We really need your prayers and support.
We got bad news about coverage on Anna's genetic testing. They are refused it to pay for it, we will need help with it. I am trying to find out if there is way to donate true non-profit org: Atypical HUS Foundation. You can also contact me at my e-mail for our address or click on PAY PAL on the right side.

Please pray for my friend Alisha. She adopted a little boy he was then 18 mo. old and now he is 5 and he is having major behavior problems.

Please pray for Abby as this week goes by. The nasty chemo she got yesterday will hit her in a few days. Historically, it puts her through another round of excruciating sores and serious complications. After 21 times in the hospital, we kinda know what to anticipate. Please pray for her comfort, speedy recover, survival, and healing.

We had out treatment today and it went well. Because of holiday today we had another doctor.
Anna's platelets went up, but hematocrit still going down. They did test on Iron and we found out, that is very, very low and now we know why her blood can't go up. Right now we will need to get her iron up, so we have daily pill to take for it, but that will take a long time to get it up. Tonight i been writing e-mails to our dr. to see if there any other options available, to help her body get iron up. Other great news is we will be doing her treatment only twice this week!!!

Anna is doing great!!
Yesterday treatment went well, her numbers didn't go up, but they give her medication to help her body build up blood cells. They never give her that before, so we will see if that will do the trick to prevent her from getting blood transfusion.

Happy valentine day!!!

Please pray for Anna

Please pray for Anna she is spiking fever today, if she will continue having in the morning then she will be admitted at Doernbecher children hospital. Our original plan for tomorrow it is just get her treatments done.
Thank you.

This post is part of "Hi/Lo Thursday" on the Riggs Family Blog. Check out their blog to read everyone else's "Hi/Lo" posts and for a chance to win $100.


Hi for us is we finally got approved for genetic testing and most existing for that it will be done in Germany. Yesterday during her treatment we told that news to our nurses at the clinic,and they ALL cheer Anna for it. Everyone will be waiting to hear results in 3 weeks after we will send it.

Our LOW
I think i never share that, but we all very tired with all medical things going on. I feel i am very burned down with trips and not be able to get things done. There is no support from my DH family and that makes even more harder.

Pray for Me .... Pray for Others

We participate in "Pray for Me... Pray for Others" on the Riggs Family Blog. Check out their blog to add your prayer request.


Our prayer for us this week is this:
Anna's labs will stay where they need to be, so far her platelets going tooo high and her kidney functions kinda up and down. Sometimes even our dr. does not know what to do, because this s only treatment available, so we have to wait and see. If we start twice a week there possibilities that her blood will start go down again and she will need it to be admitted. Please pray that God will bring healing to Anna's body and give wisdom to our doctors.

Please pray for Bolte family they already last 2 babies and she is pregnant with her 5th child. Please go to her blog http://babybolte.blogspot.com/ and leave a prayer or comment for her.

We got approved for genetic testing in Germany. Now we will have to wait about a week to draw her blood for testing, because she got her blood transfusion last week. After that they will be sending her blood to Germany and we should have all the results with in 3 weeks. :-)

Carrissa had her spine surgery yesterday it went very well and she is ready to go home today. What a fast recovery for her!!


Right before Anna got admitted in the hospital we had "Starlight Foundation" family night out.
Here are some pictures:

Last week went great. We got home on Tuesday. I didn't had our car, so we had to get someone to give us ride home it did took awhile to find someone, but we made it. We had to go back on next day and on Friday for her treatment. They all went pretty well with no problems and we will be continue 3 day a week for next week.
We are approved for genetic testing to be done her in state, but this will take 3 month, but our dr. A trying to get testing done in Germany, they do only in 3 weeks.

Here are some prayer request:
1. Her treatment will go well this week and her numbers will be up, so we can move on to twice a week.
2. Anna's genetic testing
3. For my other kids as some of them having hard time and my husband Harlan.
4. Carrissa will have spine surgery tomorrow at 2pm. We hopping it will go with out complications and fast full recovery.
5. For Abby us she fighting cancer.


Thank you

Favorite Foto Friday-Melt

This week is MELT!!
This one been taken when we had ice back in December:



It melts my heart to see Anna's

1.Smile.



2. Coming up with silly things. In this pictures she was in the hospital hiding in the closet, so she doesn't have to take a bath ;-)



3. When she is sleeping.



4. She surrounded by awesome people.

Anna and Lilly

Anna and Lilly
Originally uploaded by lululchik

Lilly came to visit Anna. They both fighing different reare diseses.

This post is part of "Hi/Lo Thursday" on the Riggs Family Blog. Check our their blog to read everyone else's "Hi/Lo" posts.

High
Anna is back home and doing better. She will be starting school today and will be attending only 2 days a week.

Low
Anna is having hard time with everything that happen in last week stay in the hospital. She just wants to be like other kids have a normal life. She will be getting "Make a wish", but straggling with decision of what she can do.

Pray for Me.... Pray for Others

We participate in "Pray for Me... Pray for Others" on the Riggs Family Blog. Check out their blog to add your prayer request.


I would like ask everyone to pray for our family, specially for Anna to go in full remission.


1. Please pray for my friend Anita she is single mom here is her prayer request:

Anita is asking for prayer for her 7 year old son Kyle and herself. Kyle has been having emotional challenges, to the point that he was removed from school.
Anita would like prayers for the correct medications and diagnosis to be made and for healing for him. The medicine he was on before this one was causing him to shut down socially.

She believes part of what is happening to him could also be that he is beginning to process an earlier abuse that occurred that he had not been able to talk about before. He has been diagnosed with bipolar and ADHD and she does not think the bipolar diagnosis is accurate. He is now enrolled in a psychiatric school where he is getting counseling and diagnosis. Anita would also like prayer that she and the psychiatrists and counselors will be able to work together.


2. Please continue to pray for Abby and other kids that i have on my side bar.

Thanks

Just very short note for everyone.
We are finally home and very tired. Tomorrow morning we have to go back for her treatments.

I will update on her stay in the next few days.
Thanks for your prayers

Anna still in the hospital, she will have her surgery tomorrow (Monday)and then she should be able to go home. Her labs are ok, not perfect. They want to look back and see if she had better progress with steroid, if she did , then she will have to take them. This is not what Anna or I want, but she needs to stay out of the hospital.
Thanks for your prayers