We went to pumpkin patch today. Anna didn't been there since she was 5yr.old with school.
She loves it, here are some pictures:


Who will first cross the bridge?




This cow loved Anna's attention and her hair :-)

We went to DCH yesterday for her treatment she did got 1 hive and it was very itching and cry ed until they give her more meds. She was out sleeping for the rest of the treatment. With her body it seems one time works and next time doesn't, they prescribed more meds for her next treatment. After treatment we met with our friend she is student there for short time as she needed go back to her class :-) Then we went and visited Carrissa. Please pray for her, she will have surgery today at 1:30pm to put her shunt back, then she should be able to go home this weekend.
We will have another trip to DCH today for her other Dr. appointment and her treatment will be this Saturday.

Last weekend went well. She got to participate at Birthday Party for Carrissa and Shayne. We been able to stay on the 10th floor with her friends until her treatment.
Her treatments went well with out any hives :-). Her labs looked better, we hopping they will stay up. Latter that evening Shayne came for overnight to our house. They had a lots of fun.

This is Carrissa


Anna and Shayne playing doctor :-)


Carrissa got a special bike


Girls

Our trip to DCH (Doernbecker hospital) went well. We stayed there from 9:30 until 4:30pm Got treatment done play with friends played BINGO game and celebrate My birthday :-)

Anna's treatments still will be 2 times a week until her numbers are stable. Last week she had to had 3 treatments, so our doctor doesn't think is good idea to even try go whole week with out treatments. So i will have to drive her to DCH every time. She made so many friends there and she thinks that is pretty much her life right now. Doctors prescribing her more steroids for treatments I personally don't really like that idea, because it looks like she still has reactions to is, so for this Sat. they prescribed even more.RRR.

Here is my friend Nancy and her daugter Carrissa and my cake:-)




Anna eats her favorite cup of soup with her friend during her treatments



That is me


Best frinds

Anna's blood pressure is stable right now. Her labs looks like they are better, they going up. She will be receiving another treatment tomorrow and on Sat. and next week we want to try to go once a week. We are hopping that her body is getting better and she will be done with all her treatments.
We will be visiting Carrissa tomorrow, please keep her in your prayers, she is not doing well, for more info check her page it is on side bar.
Also tomorrow is my birthday and i will be in the Hospital...... o well it will be great day.

Anna spiking higher blood pressure today, we had to increase her medication.

We are home

Well, we got home last night :-)
Her numbers still go down,but we are home. We will do another test tomorrow and see what happens next. We can't do ant scheduling right now.
Anna didn't go school today, i let her to take a rest and she did slept till 9am :-) Tomorrow back to school. Don't forget to check other kids on my side bar and see how they doing. Right now please keep Carrissa in your prayers as she is recovering from major surgeries.
Thanks

We still in the hospital

We still here, Anna's numbers still go down since last wed. She will be getting another treatment today and we will see what her labs today and they will make decision on if she will be going home or not.
Last night she got her treatment later in the evening around 8:30 pm, every time she has her treatment her reaction to it getting worse. they had to give her benadryl two times and some other medications to stop her from hiving. She got up this morning and still had few hives left from last night on her neck.
Right now she is visiting with friend Carrissa who has spina befida and she will be 8yr. old next week and she had 53 surgeries in her life.

We are at DCH right now, waiting for Anna's treatment. They were supposed to start at 2pm and right now is after 7 and we sill waiting :-)
Anna is having fun with her friends here wile waiting for her treatment. She is hopping to stay overnight tonight, I don't thing i am looking for it. OOO Well we will wait and see.
More updates later.

Today we had to rush to Doernbecker, as Anna's platelets start dropping. So she couldn't last a week with out her treatment :-( She had her treatment done and we back home. We still hopping that Anna's body will eventually stop dropping them and we don't have to go there. She will have to go back to Doenbecker this coming Sat. for her treatment and then we will take day at the time to figure it out what our plans for next day.
Thanks for your prayers.

Sveta and family

Anna's treatment went ok, she did had an allergic reaction. Usually we give her benadryl before treatment and then other medication for allergic reaction. But this time her hives started even before they finish her treatment, she had to wait until medicine will arrive, pour girl she was crying, but try ed not to scratch her self. Next time we will try to give her Atharax first and then have benadryl on hand. Her next treatment will be this coming Sat. They decided not to do it on Wed. We will see if she can keep her platelets up for whole week long :-)

She is something :-)

I try yo give her as much sleep in the morning as she can get during week, She gets up at 7 and needs to be out the door by 7:25 to catch her bus. Her morning routine is:
1. Get up
2 Change clothes
3 Wash her face and brush her teeth.
4 take med
5 check her blood pressure
6 Get her shoes and coat on.

Today she decided she can paint her nails and put make up on.RRRRRR NO TIME for it and i don't allow my girls to wear make up to school at least until they 14. Anna decided to go ahead and do it, it is kind of my fault too i forget to remind her since school started. Also last time wile she was in the hospital they had BINGO game and she won BIG set of makeup. She try ed to wash her lipstick off but it didn't work, so we will be talking more about it tonight. O well she did made it to the bus Stop on time :-)

Anna is doing great.
She started to attend band in school, she has to get up by 7am, it does make her days go very long.
We finally got settle with school buses, so she doesn't have to walk there. This coming Saturday she will be admitted, for treatment. We hopping everything will go well, so we will be home by that night.

Some pictures.

Here are some pictures we took at Doernecker(DCH)

She thinks she can fit there :-)

We just got home from DCH.
We had a long day. Anna attended school there, then she was supposed to have her treatment, but her line was clogged, so we had to wait for them to get that line work.We were done about at 4pm then we went to see our Dr. Anna's labs went up :-) her platelets were 346 today. We will be doing another treatment this Sat. then on Wed. and after that we will try once a week.
Anna had a friend in Shriner's Hospital witch it right next to DCH we visited her for 2 hours, then headed home.
I will post some pictures tomorrow.