We had great and busy weekend.
First we had family time with Starlight foundation. Every month they try to plan some fun stuff for family's with terminal ill kids. This time we went to Portland children theater,




We had Carrissa and her sister Shyanne to stay with us overnight.



Girls had a blast, this was Carrissa's first time to stay with us and she did great. Some of you know she was born with Spina Befida and had over 50 surgeries. On Sunday we took all the kids to my friends house and had Birthday Party for her twins they just turn 11.











Yesterday we had our trip to DCH for her treatments. It went well she had a little low blood pressure and her labs just still go down and up. It seems we can't get them just stay up. She met ballerinas there.

Anna is doing well.
She still get her treatments twice a week and they went up on her iron IV dose. They not even thinking to lower her plasma treatment even her blood levels staying up.
She did hurt her back last week, but it getting better. Anna's Birthday is coming up on May22, I would like to do something special for her. Anyone have any ideas?
I want to thank everyone who donates plasma. Anna gets 6-7 bags for each treatment, that is 6-7 people each time.
Thanks for your prayers and support

A few weeks ago we talked with our Dr. about weaning Anna off from Iron treatments. They went down to once a week, we got blood and iron results today. Her blood level is staying good, but her Iron went down. This got everyone surprised. So we are back to Iron treatments twice a week. Please continue to pray for her Iron level to go up and for Gods healing.
Thanks,
The Finley Family

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We had great weekend, there was some ups and down. I think everyone have those times. Anna is been having setbacks, when she wanted to just do her favorite sport Gymnastics. So on Saturday she decided to go and play on trumpline it was OK until her back started to hurt. Wee know she just pull her muscle, but we still had to take her to ER to make sure her line still in place and it is.
She still goes to the hospital twice a week for her treatment. Last month when we did iron test her Iron went up from 4 to 9, and today it was 8 rrrrrr. It looks like we will have to get more iron in to her.

Hi, everyone we had busy week last week. Last Monday after Anna's treatment clamp on her like broke, so they had to replace her line. On Thursday she met with designers at NIKE and pick out some things for her shoes.



Did anyone ever see this speed limit?


On Friday she had her surgery, they decided to put totally different line and Anna really likes this one. It much softer and it doesn't hurt her.








Our Easter went pretty well we visited with my sister in law and kids had lots of fun.
Here are my worries:
Her labs are stable, but there is a little number that makes me worry and doctor thinks it is OK right now. As a mom i am worry about it, because with Anna it is in a matter of day's, everything can crash and she can gets admitted. We just take day at a time to see what will bring next visit.

I do give more updates on my Facebook, you can join prayer

group for Anna

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Well this we didn't even expected. Anna's line is not usable at this moment. One of her clamps on her line is broken, so it has to be replaced. We waiting for phone call from doctors to let us know when surgery will take place. Anna's next treatment is on Friday, so i think they will try to get it done on same day before the treatment. They did wanted to do on Thursday, but Anna has to go to NIKE and she doesn't want to miss it, so her doctors are ok with it.

Sorry for not blogging this week, i need it a little brake. Everyone here got overwhelm with things going on.
Anna has some good day's some bad and is not heath is her emotional side. She is very tired with everything she has to do and go to the hospital. On Friday she had totally emotional breakdown at the hospital. She was walking to school room and we saw one of her favorite doctors and she start crying saying to her that she just wants to sleep and not deal with it. Rest of the day was not her day, her line still didn't work properly and it took long time to finish her treatment. Then we didn't got her Iron or epogen because it was too late, so she should get that that on Monday.
Anna working on her tee shirt at school


Anna is tryed to eat lunch


They took her lunch away so many times, to get her line to work

Some good thing she had her concert and she did it great and she had to go to the carnival at he school. She had so much fun there and she won large Pizza for our dinner.
This coming week on Monday they will be sending genetic testing, we are very exited that this is finally will be happening. On Thursday Anna will be starting working with NIKE designer to make her shoe.

This is 6 kids who will be designing shoes for NIKE.