Make A Wish Day 2

After we went to bed soo late we had to get up at 7am and it is different time for us 3 hr. In Salem it would be 4am u can imagine how our kids were. We went and had awesome breakfast at Gingerbread house it was awesome dining area with full of toys from every country above your heads and tables have peppermint candy's.








After breakfast Harlan went to orientation to get all our park passes, wile waiting for him we went explore place a little bit,

Found bumper boats







Anna loved ride this little toy ;-)





Then we hit the road to get to Disney Kingdom!!
Do u think Anna is ready for the day?


We had great time, kids got to ride in every ride there. Anna had special pass it allow us go with out waiting in line.







We got back by dinner time and ready to play Biggest Candy Land game and met there Gingerbread and Snow Flake princess

Make a wish: day 1

First day was pretty much traveling to Disney World.







We got to the airport by 9:30 left our car at VIP parking. Got our boarding passes and off we went. Going thru security kids had fun, because Daddy kept telling everyone to empty out their pockets and guess who forgot to do so? Harlan, he forgot that he has low pockets and had cell phone there. Kids love airplanes rides as soon we got on it everyone made sure they had something to chew, so it won't hurt their ears wile plane was going up and during landing. We had to switch airplanes in Atlanta, Anna and Misha got to meet pilot and check out his cabin then we made it to Florida.





We got there around 11:45 pm it was HOT, we had greeting person waiting for us and helped us to get our luggage and our car. Everyone loved that car and wished we had that one at home ;-)
We got in the car



and then tried to figure it out where is what for buttons, everything is automatic then finally we were on our way to Give The Kids World. On the way there we had to go thru TOLL stops were we had to pay. There was 2 toll stops, one of them u had have exact change and u just trow your coins it reminded us seeing those on the movies. It took us only about 20-25 min get to our place and it was already after 12AM. We went checked in, got our house and we were ready for bed ;-)

Wow, the day is finally here. We are off to Disney World for Anna's Make a wish trip. We don't know if we will have Internet access there, but even if we do we won't have a time to update here. Watch for updates next weekend
Have blessing week!!!!

We need your prayers

We just found out that Harlan lost his job, so that puts us in major financial problem with our bills.
We still going to Anna's Make a Wish trip and i know we will have blast, then we have to come back to reality to find job for my husband. Please keep us in your prayers and pass our need to your friends.
Right now our house is going crazy, all the kids are excited and start count out days. Some packing going on and deciding what to wear LOL, it is only will be 7 day trip.

Well it is been few weeks since i update it. We been busy with everyday stuff and getting ready for our BIG trip.

Anna had her Make a Wish granted ;-)




We had big Party over at Bullwinkles and it was fun.

Anna and her NIKE shoes
I know all of you been waiting to see Anna's new shoes, they will be out on November 1 at NIKE towns and Nike stores on line.
She did amazing job creating them, she put so much details of what she loves the most. Here are some pictures for you to see ;-)

It is been great school week.
Anna is in middle school and loves it. First two day's it was a little frustrated with the school bus, because or they came to early or they run late. For last two days it been no problems with them. Other thing it's for Anna try to adjust to her school schedule, last year she barely made it to school maybe 2 day's a week and this year are plan to miss one day a week ;-) She likes most of her teachers, except having trouble with language arts. Anna saying she talks to fast and the ones who can catch up with the teacher they get help. There is some things i have to make sure that teacher understand is her health i have to make sure what papers i sign. Like one she give me that saying she will be grated as normal child, but i can't sign that one as she on 504 program that allows her to do as much work as she can and not what the requirements from teacher and be graded differently.
Louisa is excited to get back to school and just be with friends. Big thing she got surprised was, that she got homework on first day of school, she went on and on complaining about it " WHO gives homework on first day? " LOL
Enoch in his last year middle school, well he is not too excited, but he is excited to start football. He wants to do homeschool, but with everything going on it just won't work.
Misha is in 4th grade the youngest kid there (he went from K to second grade) He has male teacher and he likes it. He even didn't want me to go to his class on first day, but he does wants me to drive there.

Tomorrow we have Starlight, we will be going watch movie. Kids are excited, specially Anna she will get to see her friends Carrissa and Cheyenne. Next few weekends will be SOO busy, we have Nike and Make a Wish going away party and then our trip.

We been getting ready for school to start next week. Anna had open house at her school and we went and met all her teacher. She will be starting middle school we do have some concerns about her be there, but we will give a try. She very excited to start and make more friends.
Anna's treatment went well with no problems, but we didn't get to see our doctor. We hoping to see her on our next visit. We did met with our students doctors who took care of Anna last year, when she was admitted. It was good to see them, they have only this year left of residency. We hoping they will still stay with Doernbecher and OHSU!!! Right Jasdeep and Tammy?? ;-)
After treatment we went to friends house and later that day Anna found out that her line is missing cap. We didn't know how long it is been missing or how it got lost, but it did, this is second time happen in 2 month. We did let doctor on call know what happen, but didn't got any antibiotics to prevent infection. I don't know how long it will take to get, but we praying that it won't happen. We have lots of things going on this month and we don't need any infections that is for sure.

Other kids are doing well. Louisa and Enoch got to go to State fair and they had blast. Misha's Birthday coming up next week, he will be 9yr. old Wow my baby is getting BIG.

You remember we lost one of our birds, so one day we got a call that one bird needs home we got it. She is very tame and loves everyone. We hope her tail will grow very soon ;-)




This are the girls got to meet with actor from Twilight dr. Collin ;-)



Our friend Kegan is doing ok, he got his second chemo dose. He still not eating or drinking and her is on feeding tube 24/7 please continue to pray for him.

Hi everyone,
First i want to tell u thanks for your prayers and support.
We had very busy and emotional week, because our family friend found out that their nephew Kegan has very aggressive cancer. We went to visit him several times and he got his first chemo last Friday.

This is picture of Kegan and actor from Twilight movie Dr. Collin:



Anna is been doing well still continue to get treatments every other week. Only concern we have she is been complaining that her head hurts, if it will be continue i will have to take her up to Doernbecher before her treatment day on Thursday.
Anna will be attending middle school this year, there she will be moving from one classroom to the other and that can be easier to become sick. If she will be having health problems, then we will have to homeschool her. She will be riding special medical bus and she is not excited about it. Anna want to be treated like normal and nothing happening with her, but right now it is not an option. Maybe next year;-)
September is our very busy month and we need Anna stay healthy for all things she has coming up.

Louisa can't wait to be back in High school to see her friends, i can't believe she will be in 10th grade. Enoch will be in 8th grade and Misha is in 4th. Enoch is not sure about going back to school he would love to homeschool, but that is not an option right now. Misha is been funny walking around saying to everyone that he wants to be TAG student (Talent and Gifted) LOL

We went to the Zoo last wed. it was fun, they had special day only for families with medical life threatening conditions. They had awesome stuff for the kids and free train rides for everyone.

Blog Hop - Time To Laugh

MOM:Noah, I smell something, why did you poop in your pants?

Noah: I didn't, it's just a skid mark cause I didn't wipe.

MOM: why didn't you wipe or ask mom for help? Noah: I didn't have TP. Me: there is tp in the bathroom.

Noah...: I didn't poop in the bathroom, I went on the tree in the backyard.

Anna had her treatment yesterday it went very well. There is not much changes except that her HCT went a tiny bit down, but there no concerns on that. She still has her mysterious rash, dr. think her skin is very sensitive to everything, so we will just keep eye on it;-)
Last week Anna, Misha, Enoch and I went to Camp Lane for whole week. I was kids camp and i was be able to help there, i am not ready to send Anna for whole week with out me and also she was need it to flush her lines everyday
All kids had blast there even with some limits, that Anna had, she be able to have fun.

Prayer request

Please pray for our dear friend and single mom to 3 beautiful boys. She noticed that her oldest son lost a weight and took him to the doctor. They send them to local hospital and from there they transfer him to Doernbecher Children hospital. He is 13 yo. and his name Kegan.
Also Anna will have her treatments and labs done today.
I will update later today after Anna's appointment.
Thanks

Anna is been doing well with her treatments going every other week. Anna did however developed some kinda rash our doctor is not that concerned about it.
Next week Anna, boys and I will be going to kids cam for 5 days. We praying that she will stay healthy with no problems. Anna decided not to bring swim suit as she knows she can't get wet ;-) Less thing for me to worry about.
On Saturday we went to participate in Air Challenge, this is wonderful organization they let kids to get on airplanes for 15-20 min. and let them experience the flight and let them steer it. Anna had to choose who will go with her and she decided to take Louisa and Hailey. Also my friend be able to come with her kids as she has 2 kids with special needs and my boys got to ride with one of them. Everyone got a blast day and can't wait to do it again next year. Anna want to make sure that next year mommy gets to got with her ;-) They got to do some other stuff, building things, riding special bikes. They they got BIG balloons i think they call them weather balloons, we tried to get them in the van. It was fun ride home