Sunday, February 22, 2009

Here is update:

Most of you know that Anna's genetic testing will not be covered, Anna had really hard time with this news in fear of what will happen now. We had a long talk with her, that God will provide fund for it.



Anna had her treatment on Thursday and got her first dose of iron, it went pretty well.

Our dr. concern is Anna been in school and other public places. We even got to talk about "Bubble boy" movie, where the boy he lived in the bubble. Not that they want to put her there, it just to compare....I told them i can't put her in the bubble, we want her to have as much normal life as possible. She is already lost her gymnastics, she want to do other things, it just won't be fair for her live like this and not to participate in anything. It will be hard for her to see everyone go play and she has to sit at home. Last time when she got small cold she end up in the hospital for whole week and wiped her blood and iron down. There is still mystery why iron wend down so fast with in 2 weeks, usually kids that get blood transfusions get too much of iron. Our most prayers right now is to get fund for Anna's genetic testing, with out that we won't really know what is going on with her with her blood, there is a lots of Q and everyone hope to get it from the genetic results. Right now we just do treatments and support her body with anything that she is missing.



We know our God is much stronger then anyone here and we praying that he will show everyone His healing in Anna very soon.



I (Sveta) had a hard week for my self, feeling i want to just turn around and see all this being gone and have a normal family life. I am tired with all the things being going on.

2 comments:

Tami said...

Oh, honey. My heart is breaking for you! How incredibly frustrating all of this is. I know what its like when you're trying to do what is necessary to help you're child and every time you turn around a road block goes up. We'll keep praying for Anna...praying for her health and healing...and praying for your peace and strength. ((hugs))

Anonymous said...

I's so sorry Sveta. I just noticed a pay pal account on your site. I'm going there now to give a little. I wish I could do more for you, if only just to give you both a big hug. Stay strong and know that people are praying for you both!