Our trip on Monday went very well. Last week Anna had some problems with her labs, then our Dr. decided to switch some medications and that helped with some results that we got today. We found out that two different medications that she took at once are not working for her, so they did some adjustment. She still on steroids witch it makes her a little puffy, but she can't take other medication to get get her extra fluids out, her kidneys don't like it, so we have to just wait until she can stop taking steroids. It seems one thing leads in to the other and that is not an option for her body. Even for her fever, she can take only Tylenol and then go to ER, so they can make sure that nothing effecting.
Anna's labs are better, even her kidneys numbers went down. Our Dr. thinks that she is stable right now as long as we continue her treatment with out stopping. For this week is still the same plan every other day, then if her labs won't go in wrong direction, then we will be able to do twice a week for awhile and then to once a week.
Also today Anna finally went back to school since winter brake, she was exited to see her friends and her teachers.
Tomorrow we are going to the hospital for her treatment and also it is a BINGO day, i think she more excited to play then get her treatment done :-)
I don't know if you remember last December "Starlight foundation" had great night out for families with the special kids like Anna.
"Just received this notice, so I hope you will join me in forwarding this once-in-a lifetime opportunity which benefits Starlight. (Ends 1/15!)
Besides . . .the photo (and it is included in the YouTube video) is of our very own Carrissa and Starry!
Help us spread the word by sharing this video!
http://www.youtube.com/watch?v=K0umI-hSF4w
Starlight
Helping seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities.
Their mailing address is:
Starlight Childrenʼs Foundation
5757 Wilshire Boulevard, Suite M100
Los Angeles , CA 90036-5810
Our telephone:
310.479.1212
Visit us on the web:
http://www.starlight.org/
Copyright (C) 2009 Starlight - All rights reserved."
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