We still in the hospital.
Anna's labs went down again, but this time her white blood cells went down too, so there was some infection involve in it. She is on strong antibiotics and we learn that she can't even get a little sick it get her back to her relapse.
The other night we were in ER we learn that if you have child with rare sickness don't go to local hospital, better if you can go straight to children one. What happen, that they didn't know her case so they pretty much dehydrated her. Also they wouldn't listen to me, she was need it blood pressure meds, they didn't give it to her. I asked them to call out Dr they didn't call until 5AM we got there at 7pm the night before. Then after they call they wanted to keep us till her labs are ready and give her meds and then send us to our DR at Dornbecher an Hour away, so i decided to just leave ER and go to our DR. I asked some friends to drive us there and we got admitted.
So here we are in our little room with our nurses waiting to go home. The residency Dr, keeps telling me that we will be here just one night, but we this will be our second night rrrrr.. Sometimes i don't understand why they can just ell us we don't know when you will be going. I got to talk to our regular DR and she told me that she will not let us go home until Friday for sure, maybe we will be home for the weekend. Also we got meet new DR Hematologist (Blood specialist) he will try to search and see if there anything we can do to prevent her from relapses. When Anna will be on FFP only once a week they want to do blood test for antibodies, if she does have them then it will be easy to treat her. I guess there is a regular Atypical HUS and there is also that cause by antibodies'. This is very interesting thing we learn today.
I tryed to post pictures, but it won't let me, so i will post them after we get home.
Have a great day!!
1 comment:
This reminds me of last March when my husband was in the hospital. He was out of his mind, sometimes unconscious, but literally not "there". He even got violent, was having dilusions, etc. I kept telling them - "He's diabetic. Does that make a difference?" Each new specialist, I'd say - "He's diabetic." Well after five days they finally found out that he had ketone acidosis - an severe diabetic reaction. I also kept begging them to call his "real" doctors - but no. I don't get it. There is no continuity of care, so I agree....even though it is a difference, you need to take her where they know her situation.
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